Development of the new Retinopathy Treatment Satisfaction Questionnaire (ReTSQ)

Alison Woodcock, Clare Bradley, R Plowright, T Kennedy-Martin, A Hirsch and T Ffytche


Alison Woodcock, Clare Bradley, R Plowright, T Kennedy-Martin, A Hirsch and T Ffytche (2005) Development of the new Retinopathy Treatment Satisfaction Questionnaire (ReTSQ). International congress series, 1282 (9).

Our Full Text Deposits

Full text access: Open

Full Text - 293.87 KB

Links to Copies of this Item Held Elsewhere


Objective: To incorporate patients' views in the design of a measure of satisfaction with treatment for diabetic retinopathy, to be used in evaluation of currently available and anticipated new therapies. This report focuses on development of the Retinopathy Treatment Satisfaction Questionnaire (RetTSQ). Development of the RetDQoL quality of life measure in the same interviews is reported elsewhere.
Methodology: During semi-structured interviews with 44 people with diabetic retinopathy (11 in each of 2 UK and 2 German hospitals), interviewees described their experiences of retinopathy treatments and reactions to possible new therapies. They completed and commented on a draft RetTSQ, based on the Diabetes Treatment Satisfaction Questionnaire (DTSQ). Drafts were revised and translated between centres, incorporating patients' views. Interviews were audio-taped, transcribed and content analysed.
Results: Interviewees were 26 men, 18 women; median age 60.8 (range: 28–82), having background or proliferative retinopathy with a range of severity (one or both eyes); median visual acuity better eye 0.80 (range: 0.0025 (hand motion only)–1.20 (6/5 vision)). Satisfaction dimensions included treatment effectiveness, emotional and physical experiences before, during and after treatment, information provision and influence over treatment. The resulting RetTSQ has 13 items and an open question, allowing additional items to be developed if needed for future treatments.
Conclusions: The RetTSQ has face and content validity for a wide range of people with diabetic retinopathy in two European countries. It is ready for further validation and for use in research and clinical contexts.

Information about this Version

This is a Published version
This version's date is: 09/2005
This item is not peer reviewed

Link to this Version

Item TypeJournal Article
TitleDevelopment of the new Retinopathy Treatment Satisfaction Questionnaire (ReTSQ)
AuthorsWoodcock, Alison
Bradley, Clare
Plowright, R
Kennedy-Martin, T
Hirsch, A
Ffytche, T
Uncontrolled Keywordsdiabetic_retinopathy, satisfaction, questionnaire, laser_photocoagulation
DepartmentsFaculty of Science\Psychology



Deposited by () on 23-Dec-2009 in Royal Holloway Research Online.Last modified on 12-May-2010


J. Evans et al., Blindness and partial sight in England and Wales: April 1990–March 1991, Health Trends 28 (1996), pp. 5–12.

[2] A. Hamilton, M. Ulbig and P. Polkinghorne, Management of Diabetic Retinopathy, BMJ Books, London (1999).

[3] Early Treatment Diabetic Retinopathy Study Research Group, Early photocoagulation for diabetic retinopathy. ETDRS report number 9, Ophthalmology 98 (1991)

[4] M. Henricsson and A. Heiji, The effect of panretinal laser photoagulation on visual acuity, visual fields and on subjective visual impairment in preproliferative and early proliferative diabetic retinopathy, Acta Ophthalmol. 72 (1994), pp. 570–575.

[5] A. Woodcock et al., The influence of diabetic retinopathy on quality of life. Interviews to guide the design of a condition-specific, individualised questionnaire: the RetDQoL, Pat. Educ. Counsel. 53 (2003) (3)

[6] C. Bradley et al., The development of an individualised questionnaire measure of perceived impact of diabetes on quality of life: the ADDQoL, Qual. Life Res. 8 (1999), pp. 79–91.

[7] C. Bradley and K.S. Lewis, Measures of psychological well-being and treatment satisfaction developed from the responses of people with tablet-treated diabetes, Diabet. Med. 7 (1990), pp. 445–451.

[8] S.M. Barendse, J. Speight and C. Bradley, The Renal Treatment Satisfaction Questionnaire (RTSQ): a measure of satisfaction with treatment for chronic kidney failure, Am. J. Kidney Dis. 45 (2005), pp. 572–579

[9] A.J. Woodcock and C. Bradley, Validation of the HIV treatment satisfaction questionnaire, Qual. Life Res. 10 (2001), pp. 517–531.

[10] N. Taback and C. Bradley, Validation of the Genital Herpes Treatment Satisfaction Questionnaire (GHerpTSQ) in status and change versions, Qual. Life Res. 9 (2000), p. 332.

[11] J. Mitchell and C. Bradley, Design of an individualized measure of the impact of macular disease on quality of life (the MacDQoL), Qual. Life Res. 13 (2004), pp. 1163–1175.

[12] I.U. Scott et al., Functional status and quality of life measurement among ophthalmic patients, Arch. Ophthalmol. 112 (1994), pp. 329–335.