Design of an individualised measure of the impact of macular disease on quality of life (the MacDQoL)

Mitchell, Jan and Bradley, Clare

(2004)

Mitchell, Jan and Bradley, Clare (2004) Design of an individualised measure of the impact of macular disease on quality of life (the MacDQoL). Quality of Life Research, 13 (6).

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Abstract

The aim of this study was to design an individualised questionnaire to measure the impact of macular disease (MD) on quality of life (QoL). Principles underlying the Schedule for the Evaluation of Individual Quality of Life (SEIQoL) interview method and the Audit of Diabetes-Dependent Quality of Life (ADDQoL) diabetes-specific questionnaire influenced the Macular Disease-Dependent Quality of Life (MacDQoL) design. The MacDQoL specifies domains of QoL that were selected using focus group methodology and refined following a postal pilot study of members of the UK Macular Disease Society (MDS). Respondents rated the impact of MD on each domain and the importance of each domain to their QoL. Mean domain scores from 69 respondents indicated that MD had a negative impact on all the domains of QoL investigated in the measure. There was preliminary evidence of good internal consistency reliability (Cronbach's alpha = 0.93, n = 37). Respondents who were registered partially sighted (P/S) or blind reported poorer QoL than those who were not registered (Kruskal-Wallis: chi2 = 14.03, n = 62, p <0.001). This evidence suggests that the measure will be sensitive to subgroup differences. The instrument has been further refined following the pilot study. The MacDQoL is being used in clinical trials and psychometric evaluation of the measure will be carried out using trial data. The measure is available for clinical use and has been linguistically validated in 15 other languages.

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This is a Submitted version
This version's date is: 2004
This item is not peer reviewed

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https://repository.royalholloway.ac.uk/items/62eb3660-6700-e500-9a0a-2f25a8ee2d82/4/

Item TypeJournal Article
TitleDesign of an individualised measure of the impact of macular disease on quality of life (the MacDQoL)
AuthorsMitchell, Jan
Bradley, Clare
Uncontrolled KeywordsFocus Groups, Great Britain, Humans, Macular Degeneration, Pilot Projects, Psychometrics, Quality of Life, Questionnaires, Sensitivity and Specificity, Sickness Impact Profile, Statistics, Nonparametric
DepartmentsFaculty of Science\Psychology

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Deposited by Research Information System (atira) on 03-Jul-2014 in Royal Holloway Research Online.Last modified on 03-Jul-2014


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